Pulse Center for Patient Safety Education and Advocacy (CPSEA) is dedicated to raising awareness about patient safety through education, advocacy, and support.
We envision a world in which the patient's voice is heard and no one is harmed by healthcare.
PATIENT AND FAMILY INVOLVEMENT
Rudy Giuliani’s wife discusses her partnership with her husband during his prostate cancer journey and their team approach to the experience
Open and candid communication with patients and their families is a key component of safe and effective health care. However, communication between caregivers and patients is sometimes hindered by longstanding myths and misconceptions about the sharing of information. The Joint Commission, with input from its Patient and Family Advisory Council, has issued a white paper designed to dispel those myths and to help organizations design more effective communication practices.
In recent years, there has been a shift toward a greater role for patients in health delivery. We are all aware of the greater focus on shared decision-making, patient satisfaction scores, information on provider price and quality to patients, and the use of incentives embedded in benefit design (such as high-deductible health plans) that put the onus on the patient to behave like a consumer and assess the value of different health services they could receive.
Patient engagement is an increasingly important component of strategies to reform health care. In this article we review the available evidence of the contribution that patient activation-the skills and confidence that equip patients to become actively engaged in their health care-makes to health outcomes, costs, and patient experience.